Psychosocial fActors Relevant to brAin DISorders in Europe (PARADISE)   

 
   Lead Investigator:    Alarcos Cieza
   Institution      :    IHRS, LMU Munich
   E-Mail           :    Alarcos.Cieza@med.lmu.de
   Proposal ID      :    136



   Proposal Description:
   Abstract:  PARADISE is the EU funded project under the Seventh Framework Programme(FP7). The objective of PARADISE is to develop and test an innovative approach to collect clinical data on the psychosocial difficulties that people experience when they suffer from brain disorders. The key to this approach which we call ``horizontal epidemiology'' is that the problems people have to deal with are not linked to the specific diagnosis of the condition they have but are actually problems that people with very different brain conditions we look at dementia, depression, epilepsy, migraine, multiple sclerosis, Parkinson Disease, schizophrenia, stroke and substance use disorders  have in common. If we are right about this, this way of collecting information would profoundly change how we organize and deliver services to people with brain disorders across Europe, improving their lives and life opportunities. PARADISE is broken down into interconnected Work packages (WPs) that form an integrated research strategy. In WP2 standard statistical techniques are applied to harmonize the information contained in the World Mental Health Survey and other relevant international neurological and psychiatric surveys. The idea here is to identify those commonly experienced psychosocial difficulties that explain the most about the lives and problems of people with different brain disorders. As an example for dementia we would like to analyze the NACC dataset. See also http://paradiseproject.eu/